{"id":4074,"date":"2018-11-13T15:05:45","date_gmt":"2018-11-13T07:05:45","guid":{"rendered":"https:\/\/www.wahtn.org\/?p=4074"},"modified":"2018-11-13T15:05:45","modified_gmt":"2018-11-13T07:05:45","slug":"bio-bank-workshop","status":"publish","type":"post","link":"https:\/\/old-website.retprogram.org\/wahtn\/2018\/11\/13\/bio-bank-workshop\/","title":{"rendered":"Biobank workshop"},"content":{"rendered":"<p>On behalf of the WAHTN, we would like to thank all who participated in the workshop on the 29 Oct 2018.\u00a0 The minutes and slides presented at the workshop are attached.<\/p>\n<p>In order to further develop a plan for a centralised biobank in WA, we would like to invite interested members to join one of the six working groups (Governance, Ethics, Quality Assurance, Data management, Infrastructure and Funding). The strategic issues to be addressed for each group are attached. We welcome your participation in the next phase of the project even if you were not able to make it to our workshop.<\/p>\n<p>With your help, each Working Group\u2019s task is to address the issues and define actions that need to occur to create the biobank hub in the context of each specific group. The Chair for each working group will be responsible to compile key messages and summarise recommendations, tasks and actions as discrete projects (small\/medium\/large, short term\/mid-term\/long term etc). A template is attached for your reference.<\/p>\n<p>Please register your interest here by Wednesday 21 November 2018. We have set a limit of 5 members in each group and this will be in a first-come first-served basis. If you are willing to be the Chair of a particular group, we ask that you include the word \u201cChair\u201d after your name when registering.<\/p>\n<p>Summary outcome with clear recommendations from each group should be submitted by 16 January 2019. Please note that this is a short term volunteer commitment from now until Jan 2019. Each group is free to meet and\/or circulate ideas via emails from November 2018 through to Jan 2019.<\/p>\n<p>Click below for the minutes and slides presented at the workshop.<\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/20181029-Biobanking-Workshop-Minutes-Full.pdf\">Biobanking Minutes 20181029<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/20181029-Attachment-1.pdf\">Biobanking workshop attachment 1 20181029<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/20181029-Attachment-2.pdf\">Biobanking workshop attachment 2 20181029<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/Strategic-Issues-to-address-for-each-working-group.pdf\">Strategic Issues to address for each working group<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/Working-Group-PoP.docx\">Working Group PoP<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/BHS-Biobank.pdf\">BHS Biobank<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/Broadhurst-Biobank-Meeting-2018.pdf\">Broadhurst Biobank Meeting 2018<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/CF-Biobank.pdf\">CF Biobank<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/Diagnostic-Biobanks_2018.pdf\">Diagnostic Biobanks<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/Eastwood-for-Biobank-workshop-Oct-2018.pdf\">Eastwood for Biobank workshop Oct 2018<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/Ethics-and-Biobanks_v1.0.pdf\">Ethics and Biobanks<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/Moses_Biobanking-workshop-slides.pdf\">Moses_Biobanking workshop<\/a><\/p>\n<p><a href=\"https:\/\/www.wahtn.org\/wp-content\/uploads\/2018\/11\/ORGINI_Biobank-presentation_FInal.pdf\">ORIGINI_Biobank presentation_Final<\/a><\/p>\n<p>\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026\u2026<\/p>\n<p><strong>Strategic Issues to address for each working group:<\/strong><\/p>\n<p><strong>Funding<\/strong><\/p>\n<p>Provide recommendations on the following:<\/p>\n<p>Source of long term funding streams, ie. potential funding source, donors and financial partners.<\/p>\n<p>Options and different level of running costs (i.e. example of sustainable cost structure?)<\/p>\n<p><strong>Governance<\/strong><\/p>\n<p>Determine and provide recommendations for an agreed governance arrangement.<\/p>\n<p><strong>Ethics<\/strong><\/p>\n<p>Provide information to address the following:<\/p>\n<p>Standardised consent toolkit for Biobank (Broad-based consent form, consent for linking patient data)<\/p>\n<p>Privacy<\/p>\n<p>Ethics Defensible plan<\/p>\n<p>Consumer and public engagement<\/p>\n<p><strong>Quality Assurance<\/strong><\/p>\n<p>Provide recommendations on the following:<\/p>\n<p>Determine SOP for specific sample collection, storage and testings.<\/p>\n<p><strong>Data management<\/strong><\/p>\n<p>Provide specific recommendations on the following:<\/p>\n<p>LIMS for biospecimen related data (meta-data and participant data) and clinical data\/medical records.<\/p>\n<p>How to harmonise and curate existing biobank data?<\/p>\n<p><strong>Infrastructure<\/strong><\/p>\n<p>Provide specific recommendations for:<\/p>\n<p>Space (where?)<\/p>\n<p>Equipment (storage and sample processing)<\/p>\n<p>Staff<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>On behalf of the WAHTN, we would like to thank all who participated in the workshop on the 29 Oct 2018.\u00a0 The minutes and slides presented at the workshop are attached. In order to further develop a plan for a centralised biobank in WA, we would like to invite interested members to join one of [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"pagelayer_contact_templates":[],"_pagelayer_content":"","footnotes":""},"categories":[19],"tags":[],"class_list":["post-4074","post","type-post","status-publish","format-standard","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/posts\/4074","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/comments?post=4074"}],"version-history":[{"count":0,"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/posts\/4074\/revisions"}],"wp:attachment":[{"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/media?parent=4074"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/categories?post=4074"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/old-website.retprogram.org\/wahtn\/wp-json\/wp\/v2\/tags?post=4074"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}